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Support for the dementia journey: 4 programs for patients and caregivers
“I wish I had done this sooner.” We hear this a lot from dementia caregivers. They say it when they see their loved one’s face light up for a respite visitor. They say it when they learn a new way to soothe challenging behavior. They say it when they discover a community who truly understands Read More
“Make the most of every moment”: Neil’s story
Diagnosed with terminal brain cancer, 19-year-old Neil chose to embrace life in every moment. By sharing his experience with hospice, his family hopes he can help others do the same.
What palliative care means for liver disease
Palliative care offers extra care, information and guidance for anyone living with a serious illness. Here’s how it helps with liver disease.
Talking about my dad: A daughter’s tribute
A young woman shares her experience with sudden loss, grief, and healing. “It is almost impossible to understand what grief is like until it happens to you,” she says.
In sickness and in health: Joanne and Ron’s story
As a long-time nurse, Joanne took care of countless people. At the end of her life, her husband and hospice team were honored to take care of her.
He lost both his parents. Now, he’ll help kids and teens heal at Camp BraveHeart.
After losing both parents within just a few months, Jay needed help coping with his grief. Now, he’ll help kids and teens cope with theirs.
What palliative care means for Alzheimer’s and dementia
For people living with Alzheimer’s or another dementia, palliative care means extra support for quality of life — theirs, and their family’s.
How does dementia feel? A new training builds understanding & empathy
It’s one thing to witness dementia in someone you care for. It’s another to experience it, even briefly, for yourself. That’s where the Virtual Dementia Tour comes in.
Belong, understand, heal: Join our LGBTQ+ Grief Support Group
For LGBTQ+ people, grief is often layered with additional stress and loss. Our LGBTQ+ Grief Support Group is a safe, inclusive place to heal.
Know someone with aphasia? Try these 10 speech-strengthening activities at home
Aphasia affects communication — and with it, social connection. These activities can support your loved one’s language goals, and keep them at the center of family fun.
Caring for someone with dementia? In Massachusetts, a free program is here to help
From free respite care to expert advice, here’s how the Alzheimer’s Disease Assistance Program is helping two Massachusetts families — and how it could help yours.
“What a privilege”: Reflections of a hospice nurse
In honor of Nurses Week, we spotlight our hospice nurse based in a Boston hospital. “So much love, so much meaning can happen in these end-of-life spaces,” she says.
“I hope I can pay this forward”: A hospice volunteer’s lasting impact
During his partner’s months on hospice, Bob often thought, “I hope I can pay this forward someday.” As a HopeHealth volunteer, he’s done just that.
12 ways occupational therapy can improve your life
Occupational therapists help you overcome any barriers between you and your best life, including tips for your physical, mental, social and environmental well-being.
Honoring a life: Remembrance items for a child who is seriously ill
Legacy-making activities honor your unbreakable bond with your child, and celebrate everything you love about them. If your child is seriously ill, these keepsakes take on special meaning.
Advice & support from Parkinson’s caregivers
If you’re caring for someone with Parkinson’s disease, a support group offers information for navigating the disease, and a safe space to share your experiences.
The power of compassion: A student volunteer’s journey with hospice
“No matter how dire things seem, you can always make a difference in someone’s life.” Here’s what one college student learned from hospice volunteering.
“This work has changed me”: Q&A with HopeHealth’s chief medical officer
In his 35 years at HopeHealth, Chief Medical Officer Edward W. Martin, MD, has changed this organization. And in return, it’s changed him. In this Q&A, he shares how.
What palliative care means for COPD and other lung diseases
For people living with a lung disease like COPD, palliative care means extra support for symptoms, and crucial information for the road ahead.
Checklist: What to look for in a hospice provider
Choosing a hospice provider can feel like an overwhelming decision. Here’s a list of what to ask about, based on recommendations from Consumer Reports and caregiver experience surveys.
From a dementia caregiver: 10 tips for self-care
When you’re caring for a loved one with dementia, how can you also find energy to take care of yourself? A dementia caregiver shares tips and examples.
A safe space, a trusted resource: Meet a hospice social worker
Social workers provide everything from emotional support to help with community and financial resources. Here’s how they fit into a hospice team.
What palliative care means for people living with heart failure
If you or a loved one is living with heart failure, you don’t have to go it alone. Palliative care helps with everything from everyday questions to long-term plans.
5 signs our Young Adult Grief Support Group may be right for you
Young people face unique challenges on their grief journey. HopeHealth’s Young Adult Grief Support Group, open to ages 18 to 35, offers a community who understands.
“Saying yes to pediatric hospice changed our lives”: Rogan’s story
To his family and care teams, 1-year-old Rogan was known as Superman. By sharing his experience with pediatric hospice, his parents hope he can help other kids with serious illness.
What palliative care means for people living with cancer
Palliative care is an extra layer of care — but for many people living with cancer, this “extra” is essential. Here’s why.
Finding the spark: The special calling of a hospice aide
In her eight years as a hospice aide, Darlene Morse has helped patients and families through their most vulnerable moments. “I feel honored to do this work,” she says.
What were the top 5 blogs of 2022?
HopeHealth shared stories of compassion and care through our blog in 2022. Here is a list of the top 5 stories our readers enjoyed.
“This is what life is about”: The legacy of a 90-year-old hospice volunteer
A 90-year-old hospice volunteer reflects on 22 years of writing patients’ life stories and comforting families after loss. “My life has been enriched beyond words,” she says.
5 benefits of adding pediatric hospice when your child is seriously ill
Pediatric patients can receive hospice services as an add-on to their other care, while still continuing treatments aimed at cure. Here’s why this extra layer of support is so important.
How (and why) to start a gratitude practice
By focusing on gratitude, you can improve your mood, your outlook and even your quality of life. But like any habit, it takes practice. Here’s how to get started.
“Dear Veteran”: A letter-writing campaign reaches veterans at the end of life
Student volunteers from Brown University have been sending thank-you letters to veterans at HopeHealth. Here’s what the letters mean to veterans, and to the students who write them.
On the road with a home care physical therapist
Home care physical therapy meets patients in the intimacy of home, tackling the specific challenges of the environment where they live. A physical therapist shares what it’s like.
Knocking on doors: How a silent monk became a hospice chaplain
Denis Lynch was a silent monk for 16 years. Today, he’s a hospice chaplain. Here’s how his path led to HopeHealth, and the lessons along the way.
7 common myths about palliative care
If you’re living with serious illness, palliative care can transform your life. But due to common myths, not enough patients understand how. Here’s what palliative care is — and isn’t.
Full circle: The inspiring journey of a volunteer turned patient
Over 12 years, volunteer Nancy Reiser shared many gifts with patients and families: compassion, a generous spirit, boundless energy. At the end of life, she made a final gift that will last forever.
5 ways physical therapy empowers patients
From learning to live safely with a chronic condition to getting back to 100% after an injury, physical therapy builds patients’ strength, skills — and confidence.
Activities to prepare your child for the death of a loved one
Kids with a parent, sibling or loved one on hospice need help coping with anticipatory grief, and preparing for what’s ahead. These activities can help.
A matter of wellness: Why health workers need a Professional Pause
Healthcare work is a special calling, with unique emotional demands. To support employees, HopeHealth launched Professional Pause. These monthly “well-being debriefings” use a simple, powerful technique to prevent burnout.
In the halls of Hulitar: An inpatient hospice nurse opens up
An inpatient hospice nurse opens up about his experiences at Hulitar Hospice Center, and what it means for patients and their families spending their final moments together.
What to expect from hospice care? A South County volunteer tells her story
Joy, comfort, connection: In 10 years as a HopeHealth volunteer, Dace Krasts of South County, RI, has seen the many sides of hospice care.
Connected, even after death: Where to put your love when you’ve lost someone special
When you’ve lost someone special, your love for them continues. Where can you put that love? A grief expert shares ways to heal and feel connected after a death.
How to plan meaningful activities for someone living with dementia
If your loved one is living with dementia, meaningful activities can help them feel connected, engaged and valued. Here are tips and ideas to get you started.
South County spotlight: After personal loss, a grief counselor finds her calling
When Marsha Ireland was 36, she lost her husband and the father of her young children. In the wake of that loss, she found her calling as a grief counselor.
From a dementia caregiver: 3 lessons that changed everything
Caring for a loved one with dementia can often feel isolating – but you’re not alone. A dementia caregiver shares his top three pieces of advice, one caregiver to another.
5 case studies: When is it time for palliative care versus hospice?
Many patients with life-limiting illnesses can receive a palliative care consultation even if they aren’t ready for hospice. Understand how palliative care and hospice are similar yet different.
Teaching from the heart: A conversation with HopeHealth’s educators
HopeHealth’s community educators aren’t just experts in serious illness. They have a personal stake in the courses they teach. Read about three of them, and the education they lead.
What is pediatric hospice care, and how is it different for kids?
When a child is facing serious illness, they need a special approach to care – and their family does too. Pediatric hospice is here to help.
Music therapist eases pain for children in palliative care
A music therapist who can play 30 instruments helps comfort children with life-threatening illnesses through HopeHealth’s palliative care program.
How to be present with a loved one at the end of life
When your loved one is nearing the end of life, here are tips for what to say and do – and how to simply be present with them.
Aphasia takes away language. Speech therapy can help restore it.
Bruce Willis’ diagnosis has raised new questions about aphasia, a communication condition that affects 2 million Americans, most over age 60. HopeHealth’s speech therapist shares answers.
“I feel the same way”: The power of caregiver support groups
Taking care of yourself is the most important thing you can do as a caregiver. Caregiver support groups offer community, understanding and advice from people who’ve been there.
From the ER to home care: A HopeHealth cardiac nurse shares her journey
In honor of Nurses Week, we spotlight Trish Diorio, cardiac nurse specialist for HopeHealth Visiting Nurse. “The whole reason you go into nursing,” says Trish, “is to make a difference.”
With volunteer’s help, hospice patient shares her legacy
Hospice volunteers share their unique gifts and personal touch to make a difference for patients. For Erin Hazlett and 96-year-old Ruth Rotenberg, simple companionship turned into a legacy project.
This can help when a loved one won’t eat or drink at end of life
Here’s what you should know when your loved one no longer wants to eat or drink while receiving hospice care.
Peer debriefing: We now pause to support each other
A new initiative brings HopeHealth clinical care teams together to talk about difficult cases they are encountering and to support each other.
What hospice care can do for advanced cardiac patients
Hospice care helps patients with heart failure avoid trips to the emergency room. Learn how this Medicare-covered benefit helps provide an extra layer of support to improve quality of life for people with advanced cardiac disease.
Sharing love after loss: Widower writes book to help his grandchildren with grief
Guy Marini was inspired by what he learned from participating in a HopeHealth grief support group. So he wrote a children’s book about grief to honor his late wife’s memory and comfort his two grandchildren.
Starting hospice care: What families coping with dementia should know
HopeHealth’s Circle of Love Dementia Care offers specialized care and resources for hospice patients with dementia and their families. Here’s what families should know about how and when a loved one is ready for hospice.
What were the top 5 stories of HopeHealth’s 2021 blog?
HopeHealth recaps its top 5 most popular blog stories of 2021. Topics included family love and empathy, end-of-life spiritual questions, the science of hospice care, pandemic myths and the nursing profession.
5 ways to help your child cope when a loved one has Alzheimer’s or dementia
Children and teens struggle with complex emotions when a loved one has Alzheimer’s or dementia. A HopeHealth grief counselor offers parents guidance for parents to help their children cope.
The healing power of a Barbie Christmas card
A silly holiday card, exchanged between two households for 26 years, has becomes an unlikely source of grief support.
Caring virtually: How telehealth helps home care patients stay safe at home
Home care patients manage chronic conditions, gain peace of mind and avoid hospitalization by learning to measure their own vital signs and check in with telehealth and remote monitoring nurse.
Why it’s never too soon to ask about hospice or palliative care
There’s an ideal time to ask about hospice or palliative care if you or a loved one has a life-limiting illness. Learn when it is and what to look for.
Why kindness counts for home care aides
A certified nursing assistant shares why she loves working in home care as she approaches her 25th anniversary with HopeHealth Community VNA.
How palliative care nurse practitioners help patients and families make informed decisions
What does a palliative care nurse practitioner do? HopeHealth’s team of palliative care consultants help patients and families understand the prognosis and make informed decisions about their care. It all starts with active listening.
Hospice chaplain: How embracing spirituality brings comfort at end of life
A hospice chaplain reveals how he guides end-of-life spiritual discussions and brings comfort to patients and families of all faiths and beliefs.
How physical therapy can help home care patients
Physical therapists and physical therapy assistants who work in home health care help their patients develop strength and endurance. To honor their contributions to improving lives, October is National Physical Therapy Month.
How signs may help those who are grieving stay connected to loved ones
Signs from a loved one who has died can be a normal part of grieving. Here are 5 stories of signs that brought comfort and healing.
Physician reveals: Getting the COVID-19 vaccine while pregnant
HopeHealth physician Rebecca MacDonnell-Yilmaz, MD, MPH, writes about her experience getting the COVID-19 vaccine while pregnant.
The surprising truth: Some patients live longer on hospice care
Carole thought her brother had weeks left to live after a serious illness. Then he started hospice and lived five more months. Learn why.
LGBTQ grief support: Journey through love, loss, and renewed hope
LGBTQ grief support group attendee shares about complicated grief and how support groups help.
Hospice aide bonds with patient over shared love of NY Yankees
HopeHealth’s Director of Clinical Outreach Services shares her personal experience of hospice: when a hospice aide cared for her dad.
6 ways to help you heal after the loss of a parent
Losing a parent can be a complicated grief journey. For Father’s Day, HopeHealth Grief Counselor Diane Lambert offers some advice to help you heal.
Q&A: Hospice aide Audrey Thomas goes above and beyond with care
The role of a hospice aide is so vital at end of life. Read how Audrey Thomas, CNA, helps patients and families make the most of every day.
Memorial donations express love, support community
Edye De Marco’s choice to name HopeHealth a beneficiary of in lieu of flowers donations in memory of her husband made a lasting impact.
Hospice care team remembers quiet grace, gentle spirit of Gray Prior
HopeHealth hospice care team members received many blessings during the time they spent with patient Gray Prior.
How technology helps speech therapy patients in pandemic
During Better Hearing & Speech Month, speech language pathologist Joni Hodges talks about using apps to adapt to working with her home care patients during a pandemic.
Nursing as a second career: How four HopeHealth nurses found their way
Meet four HopeHealth nurses who found their way to a rewarding career and never looked back.
An occupational therapist in smallest state looks at big picture
Occupational Therapy Month celebrates OTs like Elizabeth Barr, who helps HopeHealth patients do the things they want and need to do to maintain independence and reach their goals.
Volunteers return to pre-COVID-19 roles … but don’t call it a comeback
HopeHealth volunteers adapted to virtual roles after the pandemic hit last year. Now they’ve started coming back to in-person volunteering — just in time for National Volunteer Week!
New York Times asks HopeHealth about grief after COVID-19
A return to normal after Covid-19 might not be easy for people coping with grief. Our grief support expert urges empathy and understanding for others as society opens up again.
Hospice and palliative care physicians are team players every day
HopeHealth medical director Dr. J. Russell Corcoran reflects on his good fortune to recover from the virus and to work on a great team of hospice and palliative care providers.
Home care team social worker meets patients where they are
HopeHealth Visiting Nurse social worker Deirdre Marzano reaches into her “bag of goodies” to give patients something to talk about — advance directives.
Certified Nurses Day recognizes expertise, dedication to nursing
In honor of Certified Nursing Day, HopeHealth applauds its nurses who make a commitment to stay on top of their clinical care skills.
Hospice social worker helps patients and families make the most of each day
Hospice social worker Sandi Romano has worked in her field for 47 years. Learn the pearls of wisdom she’s picked up along the way.
All the right moves: how a hospice float nurse supports the care team
Hospice is a calling to bear witness and support families through the experience of losing a loved one. “I don’t think of hospice as a job. I think of it as my life’s work,” says Sheila Driscoll, RN, hospice float nurse. Find out why hospice nursing is so inspiring.
7 reasons to become a home care nurse in RI and MA
A career in home health nursing is professionally rewarding and personally meaningful. Find your calling at HopeHealth’s home care in Rhode Island and Massachusetts.
Get the facts to dispel 7 myths surrounding COVID-19 vaccine
Inaccurate information shouldn’t be the reason you delay or decide against getting vaccinated. Learn the facts here.
COVID-19 vaccine: “There wasn’t a moment of hesitation from me”
HopeHealth nurse Austyn Joaquin, RN, BSN, didn’t hesitate to receive the COVID-19 vaccine once it became available to HopeHealth employees.
Father’s passing deepens a hospice physician’s duty
Errors on death certificates are a widely recognized problem. HopeHealth Medical Director Dr. Christine Nevins Herbert is committed to improving accuracy when she fills out this legal document. Because it’s personal.
Dedicated hospice volunteer celebrates her bittersweet retirement after 15 years of service
Maddie Stepanian shares what serving as a hospice volunteer taught her about other cultures, walks of life and humanity itself.
What were our top-read stories of the year?
Can’t wait to say goodbye to 2020? Before you do, find out which stories our blog readers clicked the most this year.
The holidays aren’t the same in 2020. Grief-support ideas can help
For people in grief, facing the holiday season with pandemic restrictions can be overwhelming. A mix of traditional and virtual grief support techniques can help.
Rita’s robes: A gift of dignity and pizzaz
To honor their mother’s memory, four siblings created specially-made patient gowns with pizzaz to donate to hospice patients.
Why choose hospice? This patient reveals her answers
A woman receiving inpatient hospice care is eager to share her end-of-life wishes and debunk myths about hospice care.
A palliative care doctor shares reflections from the frontlines of COVID-19
From the coronavirus frontline: A palliative care doctor shares how his team has adapted and brought slivers of light to patients and their families this year.
Home care nurse: “I care for the whole person, not the symptoms”
A registered nurse switches to a home care nursing career and discovers the professional and personal enrichment she craved.
How a widow found new meaning through poetry, grief support groups, and helping others
A widow uses poetry to express grief and finds new meaning by leading virtual support groups.
In home care, nurses find unique mix of rigor, freedom and time to connect with patients
Rosa Aguilar, RN, shares why she loves her career practicing modern-day home care with HopeHealth.