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5 stages of dementia: What to expect & how to connect

If your loved one has dementia, here’s what to keep in mind at each stage — and how to create moments of connection along the way.

“Dying is an important part of living”: Lessons from a hospice volunteer

Hospice volunteers give so much of themselves to help patients and families. Often, they learn these life lessons along the way.

LGBTQ+ caregivers, a new support group is here for you

For LGBTQ+ caregivers, reaching out for support doesn’t always feel simple or safe. Our LGBTQ+ Caregiver Support Group hopes to help change that.

At the heart of your health team: Meet Maria, a hospice CNA

CNAs do some of the most important and intimate work in health care. At the Hulitar Hospice Center, Maria Sequeria shares what this work means to her.

Finding Solace: Top Books and Online Resources for Navigating Grief

Discover top books and online resources for navigating grief. Find comfort, understanding, and hope through our curated recommendations. Explore now to support your healing journey.

Know someone with dementia? Try these 6 tips for communication

Do you have a loved one with dementia? From sharing basic information to creating a deeper one-on-one connection, try these tips for communication.

Four days in Cape Verde: The impact of a medical mission

HopeHealth nurse Natalina Gomes, RN, went on the medical mission to Cape Verde to help others. It totally changed her perspective.

Daughter, friend, “caregiver to the caregiver”: The path & passion of a hospice volunteer

Joan’s mother, father and dear friend passed away on HopeHealth’s care. With each experience, she discovered another aspect of hospice — and another way she wanted to pay it forward.

Plan ahead for healthcare decisions: Free tips & resources for families

No matter what stage of life you’re in, set aside time now for key health decisions. It’s a gift to your family, and yourself.

“This is your day”: A hospice patient’s golf dream comes true

His whole life, Jack dreamed of playing the golf course at Rhode Island Country Club. Thanks to a hospice volunteer, he finally did.

Tell me how I can help: Meet a hospice social worker

“What would you like us to know about you, so we can care for you the way you want to be cared for?” Hospice social worker Laura McGuire usually asks patients this first. It’s just the beginning.

Tips for coping with grief on Valentine’s Day

Valentine’s Day is often full of memories, which can bring on intense feelings of loss. If you’re grieving, here are tips to get through the day.

The reason I do this: How a hospice volunteer finds his purpose

When Phil saw the ad for hospice volunteers in Massachusetts, he wasn’t sure if a guy like him could help. But he knew he wanted to try.

10 ways to manage stress in winter

There’s a reason you’re more vulnerable to stress in winter. Luckily, there are also simple ways to lift the winter blues — including tiny changes you can start today.

12 music activities & tips for someone with dementia

If your loved one has dementia, music can be a powerful tool to connect with them, calm them, and support their activities of daily living.

How do palliative social workers help people living with serious illness?

For people living with a serious illness, palliative care social workers help with everything from day-to-day stressors to big-picture decisions.

B.U.R.N. I.T.: Simple reminders to stop caregiver burnout

Through our palliative care fellowship, a nursing student explored the causes of caregiver burnout, and how to stop it before it starts.

How a theater workshop helps kids and teens navigate grief

With the help of two professional actors, kids and teens at Camp BraveHeart tapped into the power of theater to navigate grief.

Home-based palliative care helps patients with advanced illness

HopeHealth’s Advanced Illness program provides palliative care to patients in the later stages of serious illness — right in the comfort of home.

By Judy’s side: A husband’s perspective on hospice

When Judy was diagnosed with dementia, the doctor suggested hospice. “It the best thing that we have done,” says her husband, Frank. “Hospice is not what I thought it was.”

Grief & the holidays: Practical advice when you have experienced the loss of a loved one

If you’ve lost a loved one, your grief may feel particularly intense around the holidays. Here are tips to get through the season.

Hospice program honors 92-year-old veteran for military service

Over his military career, “Buzz” Tilton flew everything from fighter jets to transport planes. At age 92, his community and hospice team honored him with a veteran pinning ceremony.

Healing at home: Meet a home care physical therapist

It takes years of training to become a physical therapist. It also takes a lot of compassion. Meet one of our own, from HopeHealth’s home care team.

The role of spiritual care in mental wellness

Spiritual care is about the whole self: body, mind and spirit. At the end of life, it can play a powerful role in mental health and well-being.

How to Talk About Death With a Child or Teen Who’s Near the End of Life

Kids and teens who are seriously ill often need to talk through their thoughts, questions and fears about death. Here’s how to create a safe space for them.

Support for the dementia journey: 4 programs for patients and caregivers

“I wish I had done this sooner.” We hear this a lot from dementia caregivers. They say it when they see their loved one’s face light up for a respite visitor. They say it when they learn a new way to soothe challenging behavior. They say it when they discover a community who truly understands Read More

“Make the most of every moment”: Neil’s story

Diagnosed with terminal brain cancer, 19-year-old Neil chose to embrace life in every moment. By sharing his experience with hospice, his family hopes he can help others do the same.

What palliative care means for liver disease

Palliative care offers extra care, information and guidance for anyone living with a serious illness. Here’s how it helps with liver disease.

Talking about my dad: A daughter’s tribute

A young woman shares her experience with sudden loss, grief, and healing. “It is almost impossible to understand what grief is like until it happens to you,” she says.

In sickness and in health: Joanne and Ron’s story

As a long-time nurse, Joanne took care of countless people. At the end of her life, her husband and hospice team were honored to take care of her.

He lost both his parents. Now, he’ll help kids and teens heal at Camp BraveHeart.

After losing both parents within just a few months, Jay needed help coping with his grief. Now, he’ll help kids and teens cope with theirs.

What palliative care means for Alzheimer’s and dementia

For people living with Alzheimer’s or another dementia, palliative care means extra support for quality of life — theirs, and their family’s.

How does dementia feel? A new training builds understanding & empathy

It’s one thing to witness dementia in someone you care for. It’s another to experience it, even briefly, for yourself. That’s where the Virtual Dementia Tour comes in.

Belong, understand, heal: Join our LGBTQ+ Grief Support Group

For LGBTQ+ people, grief is often layered with additional stress and loss. Our LGBTQ+ Grief Support Group is a safe, inclusive place to heal.

Caring for someone with dementia? In Massachusetts, a free program is here to help

From free respite care to expert advice, here’s how the Alzheimer’s Disease Assistance Program is helping two Massachusetts families — and how it could help yours.

“What a privilege”: Reflections of a hospice nurse

In honor of Nurses Week, we spotlight our hospice nurse based in a Boston hospital. “So much love, so much meaning can happen in these end-of-life spaces,” she says.

“I hope I can pay this forward”: A hospice volunteer’s lasting impact

During his partner’s months on hospice, Bob often thought, “I hope I can pay this forward someday.” As a HopeHealth volunteer, he’s done just that.

12 ways occupational therapy can improve your life

Occupational therapists help you overcome any barriers between you and your best life, including tips for your physical, mental, social and environmental well-being.

Honoring a life: Remembrance items for a child who is seriously ill

Legacy-making activities honor your unbreakable bond with your child, and celebrate everything you love about them. If your child is seriously ill, these keepsakes take on special meaning.

Advice & support from Parkinson’s caregivers

If you’re caring for someone with Parkinson’s disease, a support group offers information for navigating the disease, and a safe space to share your experiences.

The power of compassion: A student volunteer’s journey with hospice

“No matter how dire things seem, you can always make a difference in someone’s life.” Here’s what one college student learned from hospice volunteering.

“This work has changed me”: Q&A with HopeHealth’s chief medical officer

In his 35 years at HopeHealth, Chief Medical Officer Edward W. Martin, MD, has changed this organization. And in return, it’s changed him. In this Q&A, he shares how.

What palliative care means for COPD and other lung diseases

For people living with a lung disease like COPD, palliative care means extra support for symptoms, and crucial information for the road ahead.

Checklist: What to look for in a hospice provider

Choosing a hospice provider can feel like an overwhelming decision. Here’s a list of what to ask about, based on recommendations from Consumer Reports and caregiver experience surveys.

From a dementia caregiver: 10 tips for self-care

When you’re caring for a loved one with dementia, how can you also find energy to take care of yourself? A dementia caregiver shares tips and examples.

A safe space, a trusted resource: Meet a hospice social worker

Social workers provide everything from emotional support to help with community and financial resources. Here’s how they fit into a hospice team.

What palliative care means for people living with heart failure

If you or a loved one is living with heart failure, you don’t have to go it alone. Palliative care helps with everything from everyday questions to long-term plans.

5 signs our Young Adult Grief Support Group may be right for you

Young people face unique challenges on their grief journey. HopeHealth’s Young Adult Grief Support Group, open to ages 18 to 35, offers a community who understands.

“Saying yes to pediatric hospice changed our lives”: Rogan’s story

To his family and care teams, 1-year-old Rogan was known as Superman. By sharing his experience with pediatric hospice, his parents hope he can help other kids with serious illness.

What palliative care means for people living with cancer

Palliative care is an extra layer of care — but for many people living with cancer, this “extra” is essential. Here’s why.

Finding the spark: The special calling of a hospice aide

In her eight years as a hospice aide, Darlene Morse has helped patients and families through their most vulnerable moments. “I feel honored to do this work,” she says.

What were the top 5 blogs of 2022?

HopeHealth shared stories of compassion and care through our blog in 2022. Here is a list of the top 5 stories our readers enjoyed.

“This is what life is about”: The legacy of a 90-year-old hospice volunteer

A 90-year-old hospice volunteer reflects on 22 years of writing patients’ life stories and comforting families after loss. “My life has been enriched beyond words,” she says.

5 benefits of adding pediatric hospice when your child is seriously ill

Pediatric patients can receive hospice services as an add-on to their other care, while still continuing treatments aimed at cure. Here’s why this extra layer of support is so important.

How (and why) to start a gratitude practice

By focusing on gratitude, you can improve your mood, your outlook and even your quality of life. But like any habit, it takes practice. Here’s how to get started.

“Dear Veteran”: A letter-writing campaign reaches veterans at the end of life

Student volunteers from Brown University have been sending thank-you letters to veterans at HopeHealth. Here’s what the letters mean to veterans, and to the students who write them.

On the road with a home care physical therapist

Home care physical therapy meets patients in the intimacy of home, tackling the specific challenges of the environment where they live. A physical therapist shares what it’s like.

Knocking on doors: How a silent monk became a hospice chaplain

Denis Lynch was a silent monk for 16 years. Today, he’s a hospice chaplain. Here’s how his path led to HopeHealth, and the lessons along the way.

7 common myths about palliative care

If you’re living with serious illness, palliative care can transform your life. But due to common myths, not enough patients understand how. Here’s what palliative care is — and isn’t.

Full circle: The inspiring journey of a volunteer turned patient

Over 12 years, volunteer Nancy Reiser shared many gifts with patients and families: compassion, a generous spirit, boundless energy. At the end of life, she made a final gift that will last forever.

5 ways physical therapy empowers patients

From learning to live safely with a chronic condition to getting back to 100% after an injury, physical therapy builds patients’ strength, skills — and confidence.

Activities to prepare your child for the death of a loved one

Kids with a parent, sibling or loved one on hospice need help coping with anticipatory grief, and preparing for what’s ahead. These activities can help.

A matter of wellness: Why health workers need a Professional Pause

Healthcare work is a special calling, with unique emotional demands. To support employees, HopeHealth launched Professional Pause. These monthly “well-being debriefings” use a simple, powerful technique to prevent burnout.

In the halls of Hulitar: An inpatient hospice nurse opens up

An inpatient hospice nurse opens up about his experiences at Hulitar Hospice Center, and what it means for patients and their families spending their final moments together.

What to expect from hospice care? A South County volunteer tells her story

Joy, comfort, connection: In 10 years as a HopeHealth volunteer, Dace Krasts of South County, RI, has seen the many sides of hospice care.

Connected, even after death: Where to put your love when you’ve lost someone special

When you’ve lost someone special, your love for them continues. Where can you put that love? A grief expert shares ways to heal and feel connected after a death.

How to plan meaningful activities for someone living with dementia

If your loved one is living with dementia, meaningful activities can help them feel connected, engaged and valued. Here are tips and ideas to get you started.

South County spotlight: After personal loss, a grief counselor finds her calling

When Marsha Ireland was 36, she lost her husband and the father of her young children. In the wake of that loss, she found her calling as a grief counselor.

From a dementia caregiver: 3 lessons that changed everything

Caring for a loved one with dementia can often feel isolating – but you’re not alone. A dementia caregiver shares his top three pieces of advice, one caregiver to another.

5 case studies: When is it time for palliative care versus hospice?

Many patients with life-limiting illnesses can receive a palliative care consultation even if they aren’t ready for hospice. Understand how palliative care and hospice are similar yet different.

Teaching from the heart: A conversation with HopeHealth’s educators

HopeHealth’s community educators aren’t just experts in serious illness. They have a personal stake in the courses they teach. Read about three of them, and the education they lead.

What is pediatric hospice care, and how is it different for kids?

When a child is facing serious illness, they need a special approach to care – and their family does too. Pediatric hospice is here to help.

Music therapist eases pain for children in palliative care

A music therapist who can play 30 instruments helps comfort children with life-threatening illnesses through HopeHealth’s palliative care program.

How to be present with a loved one at the end of life

When your loved one is nearing the end of life, here are tips for what to say and do – and how to simply be present with them.

Aphasia takes away language. Speech therapy can help restore it.

Bruce Willis’ diagnosis has raised new questions about aphasia, a communication condition that affects 2 million Americans, most over age 60. HopeHealth’s speech therapist shares answers.

“I feel the same way”: The power of caregiver support groups

Taking care of yourself is the most important thing you can do as a caregiver. Caregiver support groups offer community, understanding and advice from people who’ve been there.

With volunteer’s help, hospice patient shares her legacy

Hospice volunteers share their unique gifts and personal touch to make a difference for patients. For Erin Hazlett and 96-year-old Ruth Rotenberg, simple companionship turned into a legacy project.

This can help when a loved one won’t eat or drink at end of life

Here’s what you should know when your loved one no longer wants to eat or drink while receiving hospice care.

Peer debriefing: We now pause to support each other

A new initiative brings HopeHealth clinical care teams together to talk about difficult cases they are encountering and to support each other.

What hospice care can do for advanced cardiac patients

Hospice care helps patients with heart failure avoid trips to the emergency room. Learn how this Medicare-covered benefit helps provide an extra layer of support to improve quality of life for people with advanced cardiac disease.

Sharing love after loss: Widower writes book to help his grandchildren with grief

Guy Marini was inspired by what he learned from participating in a HopeHealth grief support group. So he wrote a children’s book about grief to honor his late wife’s memory and comfort his two grandchildren.

Starting hospice care: What families coping with dementia should know

HopeHealth’s Circle of Love Dementia Care offers specialized care and resources for hospice patients with dementia and their families. Here’s what families should know about how and when a loved one is ready for hospice.

What were the top 5 stories of HopeHealth’s 2021 blog?

HopeHealth recaps its top 5 most popular blog stories of 2021. Topics included family love and empathy, end-of-life spiritual questions, the science of hospice care, pandemic myths and the nursing profession.

5 ways to help your child cope when a loved one has Alzheimer’s or dementia

Children and teens struggle with complex emotions when a loved one has Alzheimer’s or dementia. A HopeHealth grief counselor offers parents guidance for parents to help their children cope.

The healing power of a Barbie Christmas card

A silly holiday card, exchanged between two households for 26 years, has becomes an unlikely source of grief support.

Why it’s never too soon to ask about hospice or palliative care

There’s an ideal time to ask about hospice or palliative care if you or a loved one has a life-limiting illness. Learn when it is and what to look for.

Why kindness counts for home care aides

A certified nursing assistant shares why she loves working in home care as she approaches her 25th anniversary with HopeHealth Community VNA.

How palliative care nurse practitioners help patients and families make informed decisions

What does a palliative care nurse practitioner do? HopeHealth’s team of palliative care consultants help patients and families understand the prognosis and make informed decisions about their care. It all starts with active listening.

Hospice chaplain: How embracing spirituality brings comfort at end of life

A hospice chaplain reveals how he guides end-of-life spiritual discussions and brings comfort to patients and families of all faiths and beliefs.

How signs may help those who are grieving stay connected to loved ones

Signs from a loved one who has died can be a normal part of grieving. Here are 5 stories of signs that brought comfort and healing.

Physician reveals: Getting the COVID-19 vaccine while pregnant

HopeHealth physician Rebecca MacDonnell-Yilmaz, MD, MPH, writes about her experience getting the COVID-19 vaccine while pregnant.

The surprising truth: Some patients live longer on hospice care

Carole thought her brother had weeks left to live after a serious illness. Then he started hospice and lived five more months. Learn why.

LGBTQ grief support: Journey through love, loss, and renewed hope

LGBTQ grief support group attendee shares about complicated grief and how support groups help.

Hospice aide bonds with patient over shared love of NY Yankees

HopeHealth’s Director of Clinical Outreach Services shares her personal experience of hospice: when a hospice aide cared for her dad.

6 ways to help you heal after the loss of a parent

Losing a parent can be a complicated grief journey. For Father’s Day, HopeHealth Grief Counselor Diane Lambert offers some advice to help you heal.

Memorial donations express love, support community

Edye De Marco’s choice to name HopeHealth a beneficiary of in lieu of flowers donations in memory of her husband made a lasting impact.

Hospice care team remembers quiet grace, gentle spirit of Gray Prior

HopeHealth hospice care team members received many blessings during the time they spent with patient Gray Prior.

Nursing as a second career: How four HopeHealth nurses found their way

Meet four HopeHealth nurses who found their way to a rewarding career and never looked back.

Volunteers return to pre-COVID-19 roles … but don’t call it a comeback

HopeHealth volunteers adapted to virtual roles after the pandemic hit last year. Now they’ve started coming back to in-person volunteering — just in time for National Volunteer Week!

New York Times asks HopeHealth about grief after COVID-19

A return to normal after Covid-19 might not be easy for people coping with grief. Our grief support expert urges empathy and understanding for others as society opens up again.

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